This is just a selection of some of the research projects we have completed over the last few years
 
Title Date Summary Link
Right Care, Time and Place Listening Exercise: Analysis of findings February 2018
  • NHS Newcastle Gateshead Clinical Commissioning Group (NGCCG) is working to improve and provide more joined-up care in Newcastle and as part of this they have been reviewing urgent care services across the city 
  • Between November 2017 and January 2018 a listening exercise took place where people’s views and experiences of urgent care were gathered; this report documents the findings of this exercise with 1,220 people taking part
Full report
Patient views of the new model of care for Type 2 Diabetes in Newcastle February 2018
  • Since 2016 the Diabetes Partners Strategy Group at NHS Newcastle Gateshead Clinical Commissioning Group has been reviewing the services it provides to patients in Newcastle with Type 2 Diabetes. As a result of this review a new integrated model of care has been agreed.
  • This report details the results of engagement undertaken with patients who currently receive their care at the Diabetes Centre to understand their views of one aspect of the new model - the care of patients whose condition is stable moving from the Diabetes Centre to their GP practice.
  • This report should be viewed in conjunction with NGCCG’s ‘Type 2 Diabetes Integrated Model of Care Primary Care Engagement 2017’ report detailing primary care views of the new model.

Full report

Executive Summary

Strategic Review of Carers Services in Gateshead: Understanding the Needs of Unpaid Carers March 2017
  • NHS Newcastle Gateshead Clinical Commissioning Group and Gateshead Council undertook a strategic review of the provision of services available to unpaid carers in Gateshead. As part of the review process the CCG and Council wanted to understand how they could support the needs of unpaid carers and develop future services.
  • The views of carers were gathered via the Local Engagement Board, an open access online questionnaire and the engagement activities discussed within this report. This report should therefore be viewed in conjunction with the results of the online survey and LEB activity.

Full report

Executive Summary 

Views and experiences of End of Life Care for Adults in Newcastle March 2017
  • NHS Newcastle Gateshead Clinical Commissioning Group undertook a review of end of life services for adults in Newcastle and ahead of developing an End of Life Strategy and Action Plan for Adults. As part of the review they identified a gap in evidence around people’s experiences of end of life care and also their preferences at end of life particularly with regard to seldom heard groups.
  • An engagement exercise took place between July and November 2016 gathering the experiences, views and expectations of end of life care from people living in Newcastle. Patients who were receiving palliative care and people from five seldom heard groups took part. 

Full report

Executive Summary

Urgent care services: the views and experiences of people living in the North East July 2016
  •  In July 2015, the North East became a vanguard site for urgent and emergency care. They aim to align services across the region to a single joined-up system, ensuring that all patients, including those living in remote rural locations, get the care they need, including a rapid specialist opinion should they need one.
  • As part of this process, Healthwatches across the North East were asked to submit any evidence they had around people’s views and experiences of urgent and emergency care services. This report draws together the evidence gathered by nine of the 12 North East Healthwatches and highlights some key themes for the NEUCN to consider when reconfiguring services.

Full report

Executive Summary

Views of the draft Little Orange Book May 2016
  • In 2014/15, Involve North East carried out some work on behalf of the CCG which examined the reasons behind parents and guardians presenting at A&E with their children, and specifically those cases that had been identified as clinically inappropriate presentations. A number of recommendations were made as a result of the work with a particular focus on the cohort of parents with children aged five years and under. One such recommendation was for a symptom checker.
  • As a result of this work the CCG, developed a book which provides expert advice about childhood illnesses for parents of children aged five years and under, around childhood illnesses, what to expect and how to treat it, including when to self-care and when and where to seek appropriate medical help.
  • This report gathered the views of parents and Health Visitors on the draft book before it was committed to print.

Full report

Executive Summary

Parents’ experiences of
Infant Emotional Health Services
August 2015 
  • NHS Newcastle Gateshead Clinical Commissioning Group and Newcastle City Council were undertaking a review of infant emotional health services being provided by Sure Start, Health Visiting and Northumberland, Tyne and Wear NHS Foundation Trust (NTW).
  • This project explored parents’ experience of infant emotional health services to identify gaps in provision and what further support or services would be useful for parents.

Full report

Executive Summary

Children and Young People’s Attendance at A&E June 2015
  • NHS Newcastle Gateshead Clinical Commissioning Group was reviewing A&E services to reduce inappropriate attendances by children and young people.
  • The overall aim of this project was to examine inappropriate attendance of children and young people at A&E as part of the development of the Newcastle Sick and Injured Children’s and Young People’s pathway, so that each child and young person receives the most appropriate advice and treatment in the right place, at the right time, and which enables NHS resources to be used appropriately.

Full report

Executive Summary

Caring about Carers Conference
Conference Report 
February 2015 
  • The Caring about Carers conference was co-produced by NHS Newcastle Gateshead CCG, Newcastle City Council, Newcastle Carers, Barnardos, the Elders Council, Mental Health Concern, North of England Commissioning Support Unit and the Quality of Life Partnership.
  • All the feedback from the conference was analysed by Involve North East and the report produced on behalf of Newcastle CCG and Newcastle City Council.
  • The information contained within this report was used to ensure that the CCG and Local Authority jointly commission services to meet the needs of carers.
Full report

Patients' Experience of the COPD Pathway and Awareness and Experience  of Pulmonary Rehabilitation

September 2014
  • NHS Newcastle North and East Clinical Commissioning Group (CCG) and NHS Newcastle West CCG reviewed their Chronic Obstructive Pulmonary Disease (COPD) pathway, including pulmonary rehabilitation courses to ensure patients receive the best possible care and treatment. 
  • The overall aim of this project was to understand patients' experinces of the COPD pathway to inform the future service delivery model and to understand why awareness and uptake of the pulmonary rehabilitation course remains low, identifying changes to address this.

Full report

Executive Summary

Diabetes Education: Patients' Experiences of Current Courses and Views of Proposed Courses in Newcastle

September 2014
  • NHS Newcastle North and East Clinical Commissioning Group (CCG) and NHS Newcastle West CCG reviewed type 2 diabetes education being provided to newly diagnosed patients.
  • The overall aim of this project was to test and explore type 2 diabetes patients' views on a draft service specification for structured diabetes education, to inform the final specification and future service provision for diabetes.
  • This report was produced by Involve North East, Deaflink and HAREF.

Full report

 Executive Summary

Friends and Family Test Pilot Evaluation: Views of COPD pathway patients and staff in Newcastle and Gateshead

July 2014
  • The NHS Newcastle Gateshead Clinical Commissioning Group Alliance together with The Newcastle upon Tyne Hospitals NHS Foundation Trust and Gateshead Health NHS Foundation Trust were successful in bidding to run a pilot of the Friends and Family Test (FFT) for patients with Chronic Obstructive Pulmonary Disease (COPD).
  • As patient experience feedback of the COPD pathway is currently very limited, it was felt that the FFT would provide an opportunity to capture this more effectively, allowing assessment of the care provided to patients and identification of any required improvements to the service. Involve North East evaluated how the FFT pilot was operating within the COPD Pathway in Newcastle and Gateshead.

Full report

Musculoskeletal Services: Patients’ Expectations and Outcomes 

April 2014
  • NHS Newcastle Gateshead Clinical Commissioning Group Alliance was reviewing and redesigning the Musculoskeletal (MSK) care pathway.
  • In 2013 Involve North East carried out some consultation work exploring patients’ experiences of MSK services.
  • This complementary engagement activity focused on the expectations and outcomes of MSK patients who had recently completed treatment. The aim was to explore patients’ expectations and outcomes of the MSK service following their treatment, to inform the development of patient-focused outcome measures and the design of the future MSK service delivery model.

Full report

Executive Summary 

Nursing Home Support Team Pilot Evaluation: Views of staff and residents’ relatives

March 2014
  • NHS Newcastle West CCG and NHS Newcastle North and East CCG asked Involve North East to assist with their evaluation of the Nursing Home Support Team pilot which was running in 10 care homes across the city.
  • The views of care home staff and residents were gathered around how well the service was working.
  • This information will complement the CCGs’ own evaluation, to help determine the future of the pilot project.

Full report

"I just get on with it": Diabetes and daily life

December 2013
  • This report was compiled by Involve North East for Novo Nordisk.
  • The research explored the physical, social, emotional and economic impact of hypoglycaemia (hypos) and other complications on people with Type 1 and 2 diabetes. It also examined the impact of hypos on daily routines, employment and exercise/food regimes, key challenges in medicine management and the effectiveness of health professionals’ contact with diabetes patients.
Full report

Musculoskeletal Pathways: The Patient Perspective Report

September 2013
  • NHS Newcastle West Clinical Commissioning Group (NWCCG) spent three years piloting new approaches to Musculoskeletal (MSK) care pathways comprising a telephone-based physiotherapy advice and triage service, practice-based physiotherapy and secondary care consultants.
  • In order to ensure that patients living in Newcastle West receive the best MSK services, NWCCG commissioned Involve North East to explore the experience of patients who had been treated via the pilot service as well as those whose treatment had followed the traditional, non-pilot pathway.
Full report

Living with Type 2 Diabetes 

October 2012
  • This report was complied for the Bristol-Myers Squibb Group (BMS).
  • The research explored the experience of patients with type 2 diabetes, in order to provide commissioners and other stakeholders with better knowledge of patients’ experience of type 2 diabetes, a greater understanding of the factors influencing patients’ experiences, information to help shape services that support better outcomes.
  • In particular, the research aimed to shed light on the daily realities of balancing the management of high blood sugars with the risk of hypoglycaemia. We were also asked to assess the impact of this balance on quality of life and patient safety.

 Full report

Pulmonary Rehabilitation –Experience, Expectations and Attitudes in Newcastle upon Tyne

August 2012
  • Newcastle North and East Clinical Commissioning group asked Involve North East to investigate uptake of, and attitudes towards, pulmonary rehabilitation courses by CCG patients with Chronic Obstructive Pulmonary Disease (COPD) in Newcastle upon Tyne.
  • Practitioners within the CCG wanted to learn more about the reasons behind the low uptake of courses, in order to encourage better participation and completion rates in future.

Full report

Any Qualified Provider (AQP) – Patients’ experiences of Dermatology services June 2012
  • NHS North of Tyne asked Involve North East to gather and analyse people’s experiences, perceptions and preferences of Dermatology services. This information was to be used to develop guidance for commissioners if AQP was approved for Dermatology services in the future.
  • This project aimed to consult current Dermatology patients and other health service users, exploring experiences and perceptions of, and preferences for, Dermatology services.
Full report
Exploring Awareness, Knowledge and Experiences of the GP Out of Hours Service in Newcastle June 2012
  •  Involve North East was asked to assist NHS North of Tyne with gathering feedback about the OOH service.
  • The project explored people’s awareness, knowledge and experiences of the OOH Service in Newcastle and any barriers to using the GP OOH Service.
Full report
Young People and Tobacco Packaging May 2012
  • Fresh North East commissioned Community Action on Health to carry out research into young people’s perceptions of cigarette packaging.
  • The findings of this research were used to inform Fresh’s response to the Department of Health consultation on standardised (‘plain’) tobacco packaging.
Full report
Addressing Men’s Health Inequalities in Newcastle: What Do Men Think About Health? May 2012
  • As part of NHS North of Tyne's Men’s health Inequalities in Newcastle Health Needs Assessment, Community Action on Health were asked to gather men’s views of health, and specifically to:
    • Explore perceptions of being healthy and being ill
    • Identify any triggers to using health services
    • Explore perceptions around gender differences in knowledge of common diseases and any actions to improve men’s knowledge
    • Explore perceptions around gender differences in use of health services and any actions to improve their use by men
    • Gauge attitudes towards healthy lifestyle messages
    • Identify any information needs around healthy living
Full report
Medicinal wastage: Exploring the reasons for low levels of adherence to statins April 2012
  • Community Action on Health was asked by NHS North of Tyne to carry out research to find out why some patients do not take their prescribed statin medication or take it inconsistently. in order to improve adherence rates in the future.
  • The research explored the reasons for low levels of adherence to statins in patients prescribed them for primary or secondary prevention of cardiovascular risk, e.g. leading to angina, stroke, heart attack, or associated with high blood pressure and diabetes.
Full report 
 Here’s Looking at You
Working with a different NHS:
Reflections from the Voluntary and Community Sector 
April 2012 
  • This report is one of three pieces of research carried out as part of a wider project NHS Reform: Winners and Losers in the Voluntary and Community Sector. The project was funded by the Policy and Representation Partnership hosted by Voluntary Organisations Network North East (VONNE).
  • This report was produced by Community Action on Health and Newcastle Council for Voluntary Services
  • It examines VCS experience to date and future expectations of working with the statutory health sector as the recently-passed Health and Social Care Bill took effect.
Full report 

Any Qualified Provider (AQP) – Patients’ experiences of Anti-coagulation services

March 2012
  • Community Action on Health was asked to assist NHS North of Tyne in gathering people’s experiences, perceptions and preferences of anti-coagulation services. This information was used to develop guidance for commissioners if AQP was approved for anti- coagulation services in the future.
  • This project aimed to to explore people’s experiences, perceptions and preferences of anti-coagulation services.

Full report

“My body, my life”

Choice and Control: views of patients, carers and the public in Newcastle upon Tyne

March 2012
  • This report is one of three pieces of research carried out as part of a wider project NHS Reform: Winners and Losers in the Voluntary and Community Sector. The project was funded by the Policy and Representation Partnership hosted by Voluntary Organisations Network North East (VONNE).
  • This report focussed on patients’ hopes and expectations around proposed NHS Reforms. In particular, their views around choosing both the kind of treatment they received, and who might provide that treatment, enthusiasm for, and potential engagement in, shared decision-making with clinicians at all stages of healthcare and levels of acceptance for referral to non-medical treatments and providers.

Full report

Student Health Needs Assessment: Perceptions of health and use of health services in Newcastle

March 2012
  • As part of NHS North of Tyne's Student Health Needs Assessment, Community Action on Health were asked to gather students’ perceptions of health and their use of health care services. This included:
    • Exploring perceptions of being healthy and what aspects of health are important to students
    • Understanding any differences between being healthy at home and at university
    • Identifying any barriers to staying healthy whilst at university
    • Gauging attitudes towards publicity around students and alcohol consumption
    • Identifying any information needs around safe and sensible drinking
    • Exploring the use of health services whilst at university
    • Exploring experiences of GP registration and identify any barriers to registering
    • Identifying activities to support the promotion of health services to students
    • Identifying any actions organisations could take to support students’ health needs

Full report

Working With the Voluntary and Community Sector: the views of GPs in Newcastle upon Tyne January 2012
  • This report is one of three pieces of research carried out as part of a wider project NHS Reform: Winners and Losers in the Voluntary and Community Sector. The project was funded by the Policy and Representation Partnership hosted by Voluntary Organisations Network North East (VONNE).
  • This report focussed on the nature and extent of GPs’ current understanding of the VCS and its potential; where understanding was at its best and weakest and where local GPs felt that patient-focused intervention from the VCS might enhance, or work better than, their own clinical approaches. The research also sought to establish GPs’ willingness to pay VCOs to deliver services that might support, or in some cases avert the need for, clinical interventions.

Full report

“I feel as if I’m constantly fighting with myself”
Patient Experience of Inflammatory Bowel Disease
April 2011 
  • Blue River Consulting Ltd commissioned Community Action on Health to carry out research into patients’ experience of Inflammatory Bowel Disease, in order to inform commissioning and treatment decisions in and beyond the North East.
  • The research findings were also used to develop a commissioning toolkit to be used as a training resource for GP consortia.

Full report